Developmental Disabilities: An Update for Health Professionals


UCSF Continuing Medical Education has transitioned to a new online registration system.

You will be prompted to login to your account using your email address in order to register for this course.
If you have registered for a UCSF CME course in the past, you are already in our system and should have received an email with detailed instructions on how to login.

If this is your first course with UCSF CME, please create a new account.

MOC14001 Brochure (pdf)

Course Slides

Overview Objectives
Accreditation Course Outline
Chairs Faculty
Travel & Lodging Cancellation Policy

Department: Interdisciplinary
Course Number: MOC14001
Activity Date(s): March 6- 7, 2014
Location: Laurel Heights Campus, UCSF
San Franciso, CA

Before 2/6/14
$385 Physician
$260 Other Health Professional
$260 Physician in Training
$100 Community Member (No CME)

After 2/6/14
$460 Physician
$310 Other Health Professional
$310 Physician in Training
$100 Community Member (No CME)

Parking Voucher at Laurel Heights Campus
March 6, 2014: $14
March 7, 2014: $14

Optional Printed Syllabus: $25.00

Credit: AMA PRA Category 1 Credit(s)™ (14.75)

UCSF Association of Clinical Faculty Vouchers are accepted for this course. For more information please call the Office of Continuing Medical Education at 415-476-4251. 



This interdisciplinary, interprofessional conference provides a practical and useful update for primary care and subspecialty health care professionals who care for children, youth, and adults with complex health care needs and developmental disabilities. Of special interest is focus on the self advocacy movement for individuals with developmental disabilities. The conference addresses topics across the lifespan on Autism, ADHD, Tourette’s Syndrome, relevant DSM V information, Genetics, Epigenetics, Cerebral Palsy, High Risk Infant follow-up, Health Insurance for children and adults with autism, Adaptive transportation and more. Our esteemed faculty include clinicians, researchers, epidemiologists, and health policy experts, as well as expert consultants and self advocates.

Topics should be of interest to pediatricians, family physicians, nurse clinicians, psychologists, and internists who are involved in the health care of individuals with developmental disabilities, as well as to those in other health disciplines including health policy, school health, psychiatry, dental health, social work, and case management services. The conference, although directed toward health care professionals, welcomes families of individuals with developmental disabilities who wish to learn from various disciplines represented.

Keynote presentations feature self advocates, clinicians, policy experts, and a “Cutting Edge” section on new recommendations for evaluation and management of epilepsy and cerebral palsy. Conference exhibitors will feature resources designed to help our audience better provide care for children and adults with developmental disabilities.

We look forward to seeing you at the 13th Annual Developmental Disabilities Update conference, and know that your patients and clients with special health care needs will benefit from your participation.

Back To Top


An attendee completing this course should be able to:

  1. Identify policy issues regarding health insurance benefits for individuals with autism and continued planning toward community inclusion;
  2. Define epigenetics and understand its relevance to developmental disabilities;
  3. Develop familiarity with associated disabilities of autism spectrum disorders, Tourette’s Syndrome and attention deficit disorders;
  4. Define etiology or possible causes of Autism Spectrum Disorders, ADHD, Tourette’s Syndrome, and Epilepsy;
  5. Increase knowledge regarding genetic disorders associated with developmental disabilities and diagnostic confirmation of those associations, as well as indications for genetic counseling;
  6. Inform patients and their families regarding resources and palliative services for children, youth, and adults from culturally diverse backgrounds and indications for their use;
  7. Define diagnostic considerations and treatment options for autism, ADHD, and Tourette’s syndrome, using current and new modalities;
  8. Improve knowledge of DSM V content relevant to developmental disabilities, especially to autism and related disorders;
  9. Utilize resources about legal and health insurance advocacy needs for children, youth, and adults with developmental disabilities;
  10. Understand the history of the Olmstead Decision and importance of the self advocacy movement, increased independence and access, and implications for health care.

Back To Top


The University of California, San Francisco School of Medicine (UCSF) is accredited by the Accreditation Council for Continuing Medical Education to provide continuing medical education for physicians.

UCSF designates this live activity for a maximum of 14.75 AMA PRA Category 1 CreditsTM. Physicians should claim only the credit commensurate with the extent of their participation in the activity.

This CME activity meets the requirements under California Assembly Bill 1195, continuing education and cultural and linguistic competency.

Family Physicians This Live activity, Developmental Disabilities: An Update for Health Professionals, with a beginning date of 03/06/14, has been reviewed and is acceptable for up to 12.50 Prescribed and 1.50 Elective credit(s) by the American Academy of Family Physicians. Physicians should claim only the credit commensurate with the extent of their participation in the activity.

Licensed Clinical Social Workers This course meets the qualifications on an hour-for-hour basis of continuing education credit for MFTs and/or LCSWs as required by the California Board of Behavioral Sciences. Approval No.PCE 1272.

Nursing For the purpose of recertification, the American Nurses Credentialing Center accepts AMA PRA Category 1 CreditsTM issued by organizations accredited by the ACCME.

Physician Assistants AAPA accepts category 1 credit from AOACCME, Prescribed credit from AAFP, and AMA PRA Category 1 CreditsTM from organizations accredited by the ACCME.

Psychology This educational activity is recognized by the California Board of Psychology as meeting the continuing education requirements toward license renewal for California psychologists. Psychologists are responsible for reporting their own attendance to the California Board of Psychology. The MCEP credit reporting form will be available at the course registration desk. Psychologists from other states should check with their respective licensing boards.

Back To Top

Course Outline:


For course slides, please visit this link


Thursday, March 6, 2014

7:15-8:00 Registration and Continental Breakfast

8:00-8:15 Welcome and Course Overview Lucy S. Crain, MD, MPH, FAAP
Geraldine Collins-Bride, MS, ANP, FAAN

8:15-9:15 Health Insurance for People with Developmental Disabilities
Feda Almaliti
Teresa R. Campbell, Esq.
Karen Fessel, DrPH
Lisa Kleinbub, RN, MSN
Sherrie Lowenstein, Esq.

9:15-9:30 Q & A

9:30-10:15 Lessons Learned from Agnews
Alan Wilens, MEd
Doreen E. Canton, RN, CDDN
Amy M. Narciso, RN, MSN, CNS

10:15-10:30 Q & A

10:30-10:45 Break, Exhibits

10:45-11:15 Ability Bias in the Health Professions
Clarissa Kripke, MD

11:15-12:00 Transportation and Access
Bruce Oka & Marc Anthony Soto

12:00-12:15 Q & A

12:15-1:15 Lunch (Provided) & Exhibits

1:15-1:45 The New DSM V & Autism
Robert L. Hendren, DO

1:45-2:30 DSM V & ADHD
Martin T. Stein, MD

2:30-3:15 Tourette’s Syndrome & DSM V
Thomas K. Koch, MD, FAAP, FAAN

3:15-3:30 Q & A

3:30-3:45 Break, Exhibits


3:45-4:30 The Integration Mandate and the Future of Disability Rights Advocacy
Stacey Milbern

Sarah Marquez and Brandon Young, Center for Independent Living

5:00-6:00 pm Networking Reception


Friday, March 7, 2014

7:15-7:50 Registration and Continental Breakfast

7:50-8:00 Welcome, Introductions
Lucy S. Crain, MD, MPH, FAAP
Geraldine Collins-Bride, MS, ANP, FAAN

8:00-9:00 Social Media & the Thinking Person’s Guide to Autism
Jennifer Byde Myers
Shannon Rosa, MA
Carol Greenberg
Emily Willingham, PhD

9:00-9:30 Gifts from My Sister
Susannah Kenley

9:30-10:00 End of Life Considerations: Having the Talk
C. Margaret McClaskey, MDiv, BCC

10:00-10:30 Cultural Considerations of End of Life Care Among Asians
Don C. Ng, MD

10:30-10:45 Q & A

10:45-11:00 Break, Exhibits

11:00-11:30 What’s the Human Genome Project Got to Do with DD?
Jay Ellison, MD, PhD & Kimberly Barr, LCGC

11:30-12:00 Developmental Disabilities and Mental Health: What’s Environment Got to do With It?
Mark Miller, MD, MPH

12:00-12:15 Q & A

12:15-1:30 Lunch (on your own) & Exhibits


1:30-2:15 Studies of High Risk Infants: Implications for Cerebral Palsy & Other Developmental
Anne DeBattista, PNP, MSN

2:15-2:50 Management of Movement Disorders in Cerebral Palsy
Henry G. Chambers, MD

2:50-3:00 Q & A

3:00-3:15 Break, Exhibits

3:15-4:00 Typical and Atypical Seizures
Thomas K. Koch, MD, FAAP, FAAN

4:00-4:45 Exciting Developments in the World of Epilepsy Genetics
Daniel H. Lowenstein, MD

4:45-5:00 Q & A

5:00pm Course Adjourns

Back To Top


Lucy S. Crain, MD, MPH, FAAP
Clinical Professor of Pediatrics
UCSF School of Medicine
Clinical Professor of Pediatrics
Stanford University

Geraldine Collins Bride, MS, ANP, FAAN
Clinical Professor and Vice-Chair
Department of Community
Health Systems
UCSF School of Nursing

Back To Top



Feda Amaliti
Outreach Director
Autism Health Insurance Project

Kimberly Barr, LCGC
Genetic Counselor, Regional
Genetics Education Coordinator
Kaiser Permanente

Jennifer Byde Myers
Editor, “Thinking Person's
Guide to Autism”
Director, Myers-Rosa Foundation

Teresa R. Campbell, Esq
Assistant Chief Counsel,
Department of Insurance,
State of California

Henry G. Chambers, MD
Professor of Clinical Orthopedic
Surgery; University of California,
San Diego Rady Children's Hospital

Anne DeBattista, MSN, CPNP, CPMHS, PhD(c)
Pediatric Nurse Practitioner &
Program Manager
Developmental & Behavioral Pediatrics
Lucile Packard Children's Hospital

Shannon Des Roches Rosa, MA
Senior Editor, “Thinking Person's Guide to Autism”

Jay W. Ellison, MD, PhD
Clinical Genetist
Kaiser Permanente San Francisco

Karen Fessel, DrPH
Executive Director and Founder
Autism Health Insurance Project

Joanna Fraguli
Center for Independent Living Board Member;
Programmatic Access Deputy Directory, City of San Francisco

Carol Greenberg, MA
Editor, Thinking Person's Guide to Autism

Susannah Kenley
Senior Licensing Consultant, Oracle

Lisa Kleinbub, RN, MSN
Director, Health and Behavioral
Services; Regional Center of the
East Bay

Thomas K. Koch, MD, FAAP, FAAN
Professor of Pediatrics and
Neurology; Credit Unions for Kids
Professor of Pediatric Neurology
Chief of Pediatric Neurology
Doernbecher Children's Hospital
Oregon Health and Science University

C. Margaret McClaskey, MDiv, BCC
Clinical Ethics Consultant

Stacey Milbern
Transitions Coordinator and
Community Organizer
Center for Independent Living
Consultant, Independent Consulting

Bruce Oka
Former Municipal Transportation
Agency Commissioner,
San Francisco
Disability Rights Advocate

Holly Pearson, Esq.
Deputy Director, General Counsel
California Department of
Managed Health Care

Marc Anthony Soto
General Manager
Veolia Transportation Services, Inc.

Martin T. Stein, MD
Professor of Pediatrics
University of California San Diego, Rady Children's Hospital

Alan Wilens, MEd
Community Resource Developer
Golden Gate Regional Center

Emily Willingham, PhD
Blogger and Editor,


Robert L. Hendren, DO
Professor and Vice Chair of Psychiatry
Director, Child and Adolescent Psychiatry
UCSF School of Medicine

Clarissa Kripke, MD
Clinical Professor of
Family and Community Medicine
Director, Office of Developmental Primary Care,
Department of Family and Community Medicine
UCSF School of Medicine

Daniel H. Lowenstein, MD
Robert B. and Ellinor Aird
Professor and Vice-Chair of Neurology
UCSF School of Medicine

Mark Miller, MD, MPH
Assistant Clinical Professor of Pediatrics
Director, UCSF Pediatric
Environmental Health Specialty
Unit, UCSF School of Medicine
Director, Children's Environmental
Health Program
California Environmental
Protection Agency

Don C. Ng, MD
Clinical Professor of Medicine
Medical Director, General
Medicine Clinic at Osher
UCSF School of Medicine

Back To Top

Travel & Lodging:

Conference Center
Laurel Heights Campus, UCSF
3333 California Street
San Francisco CA 94118

Hotel Information
Laurel Inn, 444 Presidio Avenue
San Francisco, CA 94115
Reservations: 415.567.8467

To reserve online, please visit this link

Hotel Rates
$195 for Presidio room
$215 for City View room
$225 for Kitchenette room
Cut-off date: February 6, 2014 or until room block is full

Parking Passes: If you pre-purchase parking passes for the conference, they will be available for you to pick-up onsite at the conference. There is also the option to pay for a parking pass onsite at the parking kiosk if you do not buy it in advance.


Back To Top

Cancellation Policy:

Cancellations received in writing before the first day of the course will be refunded, less a $75 administrative fee. No refunds will be made on cancellations received after that date.

Back To Top