Developmental Disabilities:
An Update for Health Professionals

This annual interdisciplinary conference offers a unique, practical update for primary care and subspecialty health care professionals who care for children, youth, and adults with developmental disabilities and complex health care needs. This year's conference continues to cover topics across the lifespan on a broad range of developmental disabilities as well as focus on the self advocacy movement with presentations highlighting the 25th anniversary of the Americans with Disabilities Act. Included in that focus will be special presentations by leading experts in disability rights and autism policy development. Clinics specially designed to accommodate individuals with disabilities and mobility limitations, and current and future options for improved community living resources for individuals with disabilities, will be addressed by policy makers as well as clinic directors. Expert epidemiologic perspectives on the evolving demographics of Autism Disorders and Fetal Alcohol Disorders are among this year's topics. Exciting research on the importance of early screening and services, putting research into practice for children with autism disorders, will be addressed. Identification and diagnosis of Fetal Alcohol Disorders, children, youth and adults with multiple disabilities who are in foster or dependent care, and treatment of sleep disorders in individuals with developmental disabilities are among many of the 2015 topics.

Presentations should be of interest to pediatricians, family physicians, nurse clinicians, psychologists, and internists who are involved in health care of individuals with developmental disabilities, as well as to those in other health related disciplines including health policy, dentistry, epidemiology, psychiatry, school health, social work, occupational and speech therapy and case management services. While the conference is designed for health care professionals, we welcome families and individuals with developmental disabilities who wish to learn from various represented disciplines.

Non-profit conference exhibitors feature resources designed to help our audience better provide care for children, youth, and adults with developmental disabilities. We look forward to welcoming you to the 14th annual Developmental Disabilities Update Conference and hope that your patients and clients with special health care needs will benefit from your participation.

Lucy S. Crain, MD, MPH, FAAP
Geraldine Collins-Bride, MS, ANP, FAAN
Conference Co-Chairs

An attendee completing this course should be able to:

1. Describe legislative advocacy and policy issues addressing the equal rights legislated by the Americans with Disabilities Act;
2. Implement solutions to adaptive clinical practice settings and care with relevance to developmental disabilities;
3. Consult with caregivers and parents on the importance of early screening and referral for autism spectrum disorders;
4. Review etiology/causes and epidemiology of fetal alcohol effects;
5. Consult with caregivers and parents regarding lifespan expectations and prognoses of autism spectrum disorders and other developmental disabilities;
6. Have patient education materials readily available during office visits, in multiple media formats, to patients to support the utilization of resources and health care services by children, youth, and adults with chronic developmental disabilities;
7. Facilitate access to information about community living options resources for children, youth, and adults with developmental disabilities;
8. Understand the history of the Americans with Disabilities Act and importance of the self advocacy movement for individuals with developmental disabilities and implications for health care;
9. Recognize signs of possible sleep disorders, know when to refer for specialized diagnostic studies and recommend treatment;
10. Screen for behavioral/mental health disorders in children and adults with developmental disabilities in foster/dependent care and know when and where to refer for diagnosis and treatment.

The University of California, San Francisco School of Medicine (UCSF) is accredited by the Accreditation Council for Continuing Medical Education to provide continuing medical education for physicians.

UCSF designates this live activity for a maximum of 14.50 AMA PRA Category 1 Credit^TM. Physicians should claim only the credit commensurate with the extent of their participation in the activity.

This CME activity meets the requirements under California Assembly Bill 1195, continuing education and cultural and linguistic competency.

Family Physicians This Live activity, Developmental Disabilities: An Update for Health Professionals, with a beginning date of 03/05/2015, has been reviewed and is acceptable for up to 13.50 Prescribed credit(s) by the American Academy of Family Physicians. Physicians should claim only the credit commensurate with the extent of their participation in the activity.

Licensed Clinical Social Workers This course meets the qualifications on an hour-for-hour basis of continuing education credit for MFTs and/or LCSWs as required by the California Board of Behavioral Sciences. Approval No.PCE 1272.

Nursing For the purpose of recertification, the American Nurses Credentialing Center accepts AMA PRA Category 1 Credit^TM issued by organizations accredited by the ACCME.

Physician Assistants AAPA accepts category 1 credit from AOACCME, Prescribed credit from AAFP, and AMA PRA Category 1 Credit^TM from organizations accredited by the ACCME.

Psychology This educational activity is recognized by the California Board of Psychology as meeting the continuing education requirements toward license renewal for California psychologists. Psychologists are responsible for reporting their own attendance to the California Board of Psychology. Psychologists from other states should check with their respective licensing boards.

THURSDAY MARCH 5, 2015

7:15-7:50 am Registration and Continental Breakfast

7:50-8:00 Welcome and Course Overview
Lucy S. Crain, MD, MPH, FAAP
Geraldine Collins-Bride, MS, ANP, FAAN

8:00-9:00 New Options for Community Living in California
Santi J. Rogers
Tony Anderson
Clarissa C. Kripke, MD, FAAFP
Glenn Motola, PsyD
Jennifer A. Dresen, MSW, MPH

9:00-9:20 Q & A

9:20-9:45 Break, Exhibits

SPECIAL PRESENTATIONS: Turning the Dream into Reality: Reproducible Models of Interdisciplinary
Health Care for People with DD/ID

9:45-10:15 The Lee Specialty Clinic, Louisville, KY
Matthew Holder, MD, MBA

10:15-10:45 The Achievable Clinic, Culver City, CA
Alicia Bazzano, PhD, MD, MPH

10:45-11:00 Q & A

11:00-11:45 Early Screening, Identification, and Initiation of Services for Children with Autism Spectrum Disorder
Barbara A. Bennett, MD

11:45-1:00 pm Lunch (Provided) & Exhibits

1:00-1:45 Autism Spectrum Disorder: Findings from CDC’s Autism and Developmental Disabilities Monitoring Network
Marshalyn Yeargin-Allsopp, MD

1:45-2:15 Exploring Brain Connectivity in Autism and Sensory Processing Disorders
Elysa Marco, MD & Pratik Mukherjee, MD, PhD

2:15-2:30 Q & A

2:30-2:45 Break, Exhibits

2:45-3:40 Autism Policy and Advocacy
Ari Ne'eman

3:40-4:00 Birth of the Americans with Disabilities Act: 1990
Bruce Oka

ANNUAL SHRIVER LECTURE & AWARD

4:00-5:00 The Disability Rights Education& Defense Fund
Mary Lou Breslin, MA

5:00-6:30 pm Networking Reception

FRIDAY MARCH 6, 2015

7:15-7:50 am Registration and Continental Breakfast

7:50-8:00 Welcome and Daily Overview
Lucy S. Crain, MD, MPH, FAAP
Geraldine Collins-Bride, MS, ANP, FAAN

8:00-8:45 California Captain's Project
Ann England, MA, CCC-SLP-L
Patty Schetter, MA, BCBA
Robin May, LCSW, EdM

8:45-9:15 The Healthy Athletes Program of Special Olympics    
Matt G. Holder, MD, MBA

9:15-9:45 Dental Health and Special Olympics Healthy Athletes
Allen Wong, DDS, EdD

9:45-10:00 Q & A

10:00-10:15 Break, Exhibits

10:15-10:45 The Disability Visibility Project                                                                      
Alice Wong, MS

10:45-11:30 Back to the Future with ADA: The Next 25 Years
Marshalyn Yeargin-Allsopp, MD

11:30-1:00 pm Lunch (On Your Own)

THE CUTTING EDGE

1:00-1:45 Sleep Disorders and Developmental Disabilities
Rafael Pelayo, MD

1:45-2:30 Screening and Identification of Fetal Alcohol Disorders
Barbara L. Bentley, PsyD, MS Ed

2:30-3:15 A Retrospective Look at 40 years of Fetal Alcohol Spectrum Disorders                                 
Kenneth Lyons Jones, MD                    

3:15-3:30 Q & A

3:30-3:45 Break, Exhibits

3:45-4:45 Sexual Exploitation and Multiple-Systems Involvement
George A. Fouras, MD
Paniz Bagheri

4:45-5:00 Q & A

5:00 pm Course Adjourns

Lucy S. Crain, MD, MPH, FAAP
Clinical Professor of Pediatrics (Emerita)
UCSF School of Medicine
Clinical Professor of Pediatrics
Stanford University

Geraldine Collins Bride, MS, ANP, FAAN
Clinical Professor and Vice-Chair
Department of Community Health Systems
UCSF School of Nursing

GUEST FACULTY
Tony Anderson
Executive Director, The Arc California;
Director of the Collaboration for The Arc UCP in California

Paniz Bagheri
CSEC Specialist and Consultant

Alicia Bazzano, PhD, MD, MPH
Pediatrician, The Achievable Health Center;
Chief Physician Consultant, Westside Regional Center;
Clinical Faculty, Pediatric Emergency Medicine,
University of California, Los Angeles

Barbara A. Bennett, MD
Child Development Center, Pediatric Specialty Clinics,
Department of Pediatrics, California Pacific Medical Center

Barbara L. Bentley, PsyD, MS Ed
Pediatric Psychologist,
Lucile Packard Children's Hospital,
Stanford University, Stanford, CA

Mary Lou Breslin, MA
Senior Policy Advisor,
Disability Rights Education and Defense Fund, Berkeley, California

Jennifer A. Dresen, MSW, MPH
Director, Center for Health & Wellness
The Arc San Francisco

Ann England, MA, CCC-SLP-L
Assistant Director, Diagnostic Center, Northern CA, CDE;
CAPTAIN Leader
(California Autism Professional Training and Information Network)

George A. Fouras, MD
Staff Psychiatrist, Foster Care
Mental Health Program & Juvenile
Hall (Special Programs for Youth),
Department of Public Health, San Francisco, CA;
Consultant, Human Services Agency

Matt G. Holder, MD, MBA
President, American Academy of Developmental Medicine and Dentistry;
Global Medical Advisor, Special Olympics, Inc.;
Vice-President, Council on Developmental Disabilities;
CEO, Lee Specialty Clinic, Louisville, KY

Kenneth Lyons Jones, MD
Distinguished Professor of Pediatrics;
Medical Director, California
Teratogen Information Service and Clinical Research Program,
University of California, San Diego, School of Medicine

Robin May, LCSW, EdM
Alta California Regional Center, ASD Clinical Specialist

Glenn Motola, PsyD
Chief Executive Officer, The Arc San Francisco

Ari Ne'eman
Public Policy Team Co-Lead, LEAD Center
President and Co-Founder, Autistic
Self Advocacy Network (ASAN)

Bruce Oka
Commissioner (retired), San Francisco Transportation
Authority, Disability Rights Advocate

Rafael Pelayo, MD
Professor, Psychiatry& Behavioral Science,
Stanford Center for Sleep
Sciences and Medicine,
Stanford University School of Medicine

Santi J. Rogers
Director, California Department of Developmental Services,
Sacramento, CA

Patty Schetter, MA, BCBA
Project Coordinator, Center for Excellence in Developmental
Disabilities, UC Davis MIND Institute

Allen Wong, DDS, EdD
Professor and Director AEGD Program
Director, Hospital Dentistry Program
Pacific Dugoni School of Dentistry, San Francisco, CA

Marshalyn Yeargin-Allsop, MD
Medical Epidemiologist & Chief, Developmental Disabilities Branch,
Centers for Disease Control and Prevention, Atlanta, GA

UCSF FACULTY

Clarissa C. Kripke, MD, FAAFP
Clinical Professor and Director,
Developmental Primary Care,
Department of Family and Community Medicine

Elysa Marco, MD
Associate Professor of Neurology, Pediatrics, and Psychiatry;
Director of Research, Autism and Neurodevelopment Program

Pratik Mukherjee, MD, PhD
Professor of Radiology and Biomedical Imaging

Alice Wong, MS
Staff Research Associate, Community Living Policy Center, UCSF;
Project Coordinator, Disability Visibility Project

CONFERENCE LOCATION
Laurel Heights Campus, UCSF
3333 California Street, San Francisco CA 94118
Phone number: 415-476-8050

HOTEL
Laurel Inn
444 Presidio Avenue
San Francisco, CA 94115
415-567-8467

Rates: Our roomblock has filled. Please contact the Laurel Inn to inquire about their current rates.