16th Annual Developmental Disabilities:
An Update for Health Professionals


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Brochure Syllabus exhibitors

Overview Objectives Accreditation Course Outline
Chairs Faculty Travel & Lodging Cancellation Policy

Department: Interdisciplinary
Course Number: MOC17001
Activity Start Date: March 2, 2017
Activity End Date: March 3, 2017
Location: UCSF Laurel Heights Conference Center
San Francisco, CA

Early Bird Ends - 1/31/17
Physicians $425.00
Other Health Professionals $295.00
Residents/Fellows $295.00
Community Members (no CME) $100.00

Regular Fee Begins - 2/1/17
Physicians $525.00
Other Health Professionals $375.00
Residents/Fellows $375.00
Community Members (no CME) $100.00

Parking Voucher at Laurel Heights Campus $15.00 (per day)



The 16th annual interdisciplinary conference celebrates INFORMED HEALTH CARE FOR INDIVIDUALS WITH DEVELOPMENTAL DISABILITIES, offering a unique update for primary care and subspecialty health care professionals and others who care for children, youth, and adults with developmental disabilities and complex health care needs. The 2017 conference continues to cover topics across the lifespan on a broad range of developmental disabilities including autism spectrum disorders and Down syndrome. Experts will continue the discussion of community living options and transforming systems of care for the 21st century for children and adults with Developmental Disabilities. The 2017 conference will feature special focus on the emerging topic of Zika virus infection and associated intellectual and developmental disabilities with subspecialists from infectious disease, developmental pediatrics, obstetrics, and environmental health. Cultural and social diversity and determinants of disability will be highlighted with special presentations on toxic stress and an exciting presentation of the FRAME Project by renowned fashion photographer Rick Guidotti. Policy updates on supportive decision making and self-determination within a broader social construct will continue. We are pleased to present cutting edge talks on psychopharmacology, intriguing research, Autism Spectrum Disorders, alternative therapies, and anxiety de-escalation and stress reduction for people with developmental disabilities.

Presentations should be of interest to pediatricians, family physicians, nurse clinicians, psychologists, and internists who are involved in health care of individuals with developmental disabilities, as well as to those in other health-related disciplines including health policy, dentistry, epidemiology, psychiatry, school health, social work, occupational and speech therapy and case management services. While the conference is designed for health care professionals, we welcome families and individuals with developmental disabilities who wish to learn from various represented disciplines.

Non-profit conference exhibitors feature resources designed to help our audience better provide care for children, youth, and adults with developmental disabilities. We look forward to welcoming you to the 16th annual Developmental Disabilities Update Conference and hope that your patients and clients with special health care needs will benefit from your participation.

Lucy S. Crain, MD, MPH, FAAP
Geraldine Collins-Bride, MS, ANP, FAAN

Conference Co-Chairs

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An attendee completing this course will be able to:

  1. Be familiar with state and national advocacy, and policy issues addressing special needs and interventions for children and adults with developmental disabilities in the 21st century;
  2. Understand expanded concepts and impact of diversity in the DD population;
  3. Describe and apply the current evidence-basis for music, movement, and other alternative therapies for autism spectrum disorders and other developmental disabilities;
  4. Incorporate new standards of care regarding diagnosis and counseling for caregivers and parents regarding expectations and prognosis of Down Syndrome into practice;
  5. Promote awareness of social and cultural disparities, and implications for healthcare access and quality of care for individuals with developmental disabilities;
  6. Put into practice techniques to minimize stress and anxiety in DD patients, and counsel patients and caregivers on de-escalation techniques;
  7. Integrate supportive decision making and self-determination and relevant policies within the framework of quality healthcare;
  8. Describe Zika syndrome associated pathology and guidelines for long term follow-up of co-morbidities, including hearing impairment;
  9. Identify dysmorphic features, screening guidelines for, and confirmation of a diagnosis of Zika disease, including consultation with the PEHSU (Pediatric Environmental Health Screening Unit);
  10. Better understand how continuing neuro-genetic research holds promise for putting research into practice;
  11. Apply new knowledge about psychotropic medications and develop a strategy for when to prescribe, and when to refer;
  12. Recognize when cultural profiling might refer to children and adults with dysmorphic features or syndromes associated with developmental disabilities.

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The University of California, San Francisco School of Medicine (UCSF) is accredited by the Accreditation Council for Continuing Medical Education to provide continuing medical education for physicians.

UCSF designates this live activity for a maximum of 13.75 AMA PRA Category 1 CreditsTM. Physicians should claim only the credit commensurate with the extent of their participation in the activity.

This CME activity meets the requirements under California Assembly Bill 1195, continuing education and cultural and linguistic competency.

Family Physicians This Live activity, 16th Annual Developmental Disabilities: Update for Health Professionals, with a beginning date of 03/02/2017, has been reviewed and is acceptable for up to 13.50 Prescribed credit(s) by the American Academy of Family Physicians. Physicians should claim only the credit commensurate with the extent of their participation in the activity.

Licensed Clinical Social Workers This program is Approved by the National Association of Social Workers (Approval # 886748651-7594) for 13.5 continuing education contact hours.

Nursing For the purpose of recertification, the American Nurses Credentialing Center accepts AMA PRA Category 1 CreditsTM issued by organizations accredited by the ACCME.

Physician Assistants AAPA accepts category 1 credit from AOACCME, Prescribed credit from AAFP, andAMA PRA Category 1 CreditsTM from organizations accredited by the ACCME.

Psychology This educational activity is recognized by the California Board of Psychology as meeting the continuing education requirements toward license renewal for California psychologists. Psychologists are responsible for reporting their own attendance to the California Board of Psychology. Psychologists from other states should check with their respective licensing boards.

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Course Outline:


8:15-8:50 am Registration and Continental Breakfast

8:50-9:00 Welcome and Course Overview
Lucy S. Crain, MD, MPH, FAAP
Geraldine Collins-Bride, MS, ANP, FAAN

9:00-10:00 Update on California's Intellectual and Developmental Disabilities Systems and Services
Shelton Dent & Eric Zigman

10:00-10:15 Break, Exhibits

10:15-10:45 When Listening is Complicated: Skills for Honoring the Individual Perspectives of Every Person with Disabilities
Ruti Regan

10:45-11:15 Supported Decision Making, Civil Liberties & Alternatives to Guardianship
Susan P. Mizner, JD

11:15-11:45 Quality in Home & Community Based Services to Support Community Living
Ari Ne’eman

11:45-12:00 pm Q & A

12:00-1:00 Lunch (Provided) & Exhibits

1:00-2:30 Zika Update
I. Leslie Rubin MD
Mark Miller, MD, MPH
Yvonne (Bonnie) Maldonado, MD
Kirsten Salmeen, MD

2:30-2:45 Q & A

2:45-3:00 Break, Exhibits

3:00-3:30 Child Development, Resilience, and the Environment
Mark Miller, MD, MPH

3:30-4:00 Social and Cultural Determinants of Developmental Disability
I. Leslie Rubin MD

4:00-4:15 Q & A


4:15-4:45 California Association of Regional Center Agencies
Amy Westling, MPA
(Introduction by Elizabeth Grigsby, Client Advocate, GGRC)


4:45-5:45 POSITIVE EXPOSURE: The FRAME Project
(Faces Redefining the Art of Medical Education)
Rick Guidotti

5:45-7:15 pm Networking Reception



7:15-7:50 am Registration and Continental Breakfast

7:50-8:00 Welcome and Daily Overview
Lucy S. Crain, MD, MPH, FAAP & Geraldine Collins-Bride, MS, ANP, FAAN

8:00-8:45 Developing Resilience: How to Be Inspired (When You're Really Just Tired)
Matthew M. Verscheure, MS-HSA & G. Dennis Gallegos

8:45-9:30 Examining the Evidence for Music Therapy with Individuals with ASD and DD
Pierre Brennan, MT-BC, BCBA

9:30-9:45 Q & A

9:45-10:00 Break, Exhibits

10:00-10:30 Conversations About Down Syndrome
Cathleen Small, MA

10:30-11:00 Primary Care of Children and Young Adults with Down Syndrome
Tracy L. Trotter, MD, FAAP 

11:00-11:30 Seizures in Children & Youth with DD
Joseph Sullivan, MD

11:30-11:40 Q & A

11:40-1:00 pm Lunch (On Your Own)


1:00-1:30 Differential Diagnosis of Autism Spectrum Disorder: A Neurologist’s Perspective
Elliott H. Sherr, MD, PhD

1:30-2:00 Psychopharmacology and Autism Spectrum Disorders
Bennett L. Leventhal, MD

2:00-2:10 Q & A

2:10-2-30 Break, Exhibits

2:30-3:00 Complementary and Integrative Therapies
Robert Hendren, DO

3:00-3:30 The STAR Program
Whitney Ence, PhD, BCBA-D

3:30-4:00 Anxiety De-escalation and Stress Reduction Techniques
Vanessa Hus Bal, PhD & Gregory Lyons, PhD, BCBA

4:00-4:30 Q & A

4:30 pm Course Adjourns

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Lucy Crain MD, MPH, FAAP
Clinical Professor of Pediatrics (Emerita) UCSF School of Medicine;
Clinical Professor of Pediatrics, Stanford University

Geraldine Collins-Bride, MS, ANP, FAAN
Clinical Professor and Vice-Chair, Department of Community Health Systems,
UCSF School of Nursing

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Nancy Bargmann, MS, MBA
California Department of Developmental Services
Sacramento, CA

Pierre Brennan, MT-BC, BCBA
Music Therapist & Behavior Analyst;
Fellow of the Academy of Neurologic Music Therapy;
Founder & Program Director of Developmental Rhythms,
Kentfield, CA

G. Dennis Gallegos
Training Specialist, Homebridge
San Francisco, CA

Rick Guidotti
Award-winning Fashion Photographer
Founder and CEO: Positive Exposure
New York, NY

Yvonne (Bonnie) Maldonado, MD
Professor of Pediatrics (Infectious Diseases) and Health Research and Policy;
Director, Global Child Health Program
Stanford University, Stanford CA

Susan P. Mizner, BA, JD
Disability Counsel,
American Civil Liberties Union (ACLU)

Ari Ne’eman
CEO, MySupport
Washington, DC

I. Leslie Rubin, MD
President, Innovative Solutions
for Disadvantage and Disability;
Associate Professor of Pediatrics,
Morehouse School of Medicine;
Co-director, Southeast
Pediatric Environmental Health
Specialty Unit, Emory University;
Medical Director,
Developmental Pediatrics Specialists,
Atlanta, GA

Ruti Regan
Rabbinical Student,
Jewish Theological Seminary of America;
Board Member and Founder, Anachnu;
Inclusion Speaker and Trainer,
New York, NY

Cathleen Small
Medical Outreach Alliance
Coordinator and Legislative Advocate, Down Syndrome
Connection of the Bay Area;
Board of Directors,
Down Syndrome Diagnosis Network;
Member, Special Education
Advisory Committee for the California Office of Administrative Hearings,
Danville, CA

Matthew M. Verscheure, MS-HSA
Director of Training, Homebridge
San Francisco, CA

Amy Westling, MPA
Interim Executive Director, Association of Regional Center Agencies,
Sacramento, CA

Eric Zigman
Executive Director,
Golden Gate Regional Center
San Francisco, CA


Whitney Ence, PhD, BCBA-D
Director of Clinical Services, The Service, Training, Advocacy, and Research (STAR) Center for ASD and NDDs

Robert L. Hendren, DO
Professor of Psychiatry and Behavioral Science

Vanessa Hus Bal, PhD
Assistant Professor,
Department of Psychiatry,
STAR Center for ASD & NDDs

Bennett L. Leventhal, MD
Professor, Division of Child & Adolescent Psychiatry,
Department of Psychiatry;
Training Director, Child and Adolescent Psychiatry;
Clinical Director, STAR Center for ASD and NDD

Gregory Lyons, PhD, BCBA
Behavior Analyst, Clinical Researcher
STAR Center for ASD and NDDs

Michael M. Merzenich, PhD
Professor Emeritus Neuroscientist, UCSF
Winner, 2016 Kavli Prize in Neuroscience

Mark Miller MD, MPH
Co-director, Western States Pediatric
Environmental Health Specialty Unit
at University of California, San Francisco;
Director, Community Outreach and Translation Core, Center for
Integrative Research on Childhood
Leukemia and the Environment, UC Berkeley;
Director, Children's Environmental
Health Program, California EPA

Kirsten Salmeen, MD
Assistant Professor of Obstetrics,
Gynecology & Reproductive Sciences

Elliott H. Sherr, MD, PhD
Professor of Neurology & Pediatrics
Institute of Human Genetics

Joseph Sullivan, MD
Associate Professor of Neurology and of Pediatrics
Director, UCSF Pediatric Epilepsy Center

Tracy L. Trotter, MD, FAAP
Primary Care Pediatrician;
Associate Professor of Pediatrics, UCSF

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Travel & Lodging:

UCSF Laurel Heights Conference Center
3333 California Street
San Francisco, CA 94118

No dedicated hotel roomblocks have been reserved for this course. If you need further assistance with hotel/lodging, please contact
Gaelen Lombard: Gaelen.Lombard@ucsf.edu

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Cancellation Policy:

Cancellations received in writing before March 1, 2017 will be refunded, less a $75 administrative fee. No refunds will be made on cancellations received after that date.

Please email your requests to registration@ocme.ucsf.edu.

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