UCSF CME: 19th Annual Developmental Disabilities:
An Update for Health Professionals

Overview:

The 19th annual interdisciplinary conference offers a unique update for primary care and subspecialty health care professionals and others who care for children, youth, and adults with developmental disabilities and complex health care needs. Most medical and health professional education programs inadequately address care for people with developmental and intellectual developmental disabilities, although they represent a growing (and aging) population in the US. The pace of new information and research provides us with exciting opportunities to transform and improve the quality of care provided to these individuals.

The conference covers a broad spectrum of developmental disabilities, with special focus on autism spectrum disorders and cerebral palsy in 2020. Our emphasis this year is on communication, self-determination and supported decision-making, transitions from childhood to adulthood, and access to healthcare systems and services from a variety of specialists. We are pleased to also present talks on maximizing potential, mental health, dental care, and advocacy.

Presentations by our expert faculty should be of interest to pediatricians, family physicians, nurse clinicians, psychologists, and internists who are involved in the health care of individuals with developmental disabilities, as well as to those in other health-related disciplines including health policy, epidemiology, psychiatry, school health, social work, and case management services. While the conference is designed for health care professionals, we welcome families and individuals with developmental disabilities who wish to learn from the various represented disciplines.

Non-profit conference exhibitors feature resources to help our audience better provide care for children, youth, and adults with developmental disabilities. We look forward to welcoming you to the 19th annual Developmental Disabilities Update Conference and hope that your patients and clients with special health care needs will benefit from your participation.

Lucy S. Crain, MD, MPH, FAAP and Geraldine Collins-Bride, MS, ANP, FAAN
Conference Co-Chairs

This activity is developed by a planning and advisory committee made up of self-advocates and representatives from the following agencies: UCSF, Stanford University, The Arc San Francisco, Golden Gate Regional Center, East Bay Regional Center, State Council on Developmental Disabilities, Support for Families, WITH Foundation, and the California Department of Developmental Services.

Objectives:

An attendee completing this course will be able to:

1. Discuss state and national advocacy, and policy issues surrounding insurance for those with special needs and creating access to healthcare for children and adults with developmental disabilities in the 21st century;
2. Discuss current social and cultural disparities, and implications for healthcare access and quality of care for individuals with developmental disabilities;
3. Counsel individuals and families regarding special needs trusts, self-determination and supported decision-making;
4. Identify and implement new communication strategies for individuals with developmental and intellectual disabilities;
5. Provide informed healthcare for people with autism spectrum disorders and other behavioral disorders and develop strategies for appropriate referral;
6. Describe innovations in dental care for people with DD/ID and make patient recommendations accordingly;
7. Apply state of the art healthcare for patients with movement disorders to improve quality of life;
8. Identify the signs of sexual abuse or trafficking, and have strategies to seek intervention;
9. Counsel patients and families on potentially dangerous new “cures” for developmental disabilities;
10. Discuss mental health care and be aware of psychopharmacological considerations for people with intellectual and developmental disabilities.

Accreditation:

The University of California, San Francisco School of Medicine (UCSF) is accredited by the Accreditation Council for Continuing Medical Education to provide continuing medical education for physicians. UCSF designates this live activity for a maximum of 14.50 AMA PRA Category 1 CreditsTM. Physicians should claim only the credit commensurate with the extent of their participation in the activity.

This CME activity meets the requirements under California Assembly Bill 1195, continuing education and cultural and linguistic competency.

Family Physicians
Application for CME credit has been filed with the American Academy of Family Physicians. Determination of credit is pending.

Nursing
For the purpose of recertification, the American Nurses Credentialing Center accepts AMA PRA Category 1 Credits^TM issued by organizations accredited by the ACCME.

Physician Assistants
AAPA accepts category 1 credit from AOACCME, Prescribed credit from AAFP, and AMA PRA Category 1 Credits^TM from organizations accredited by the ACCME.

Psychology
This educational activity is recognized by the California Board of Psychology as meeting the continuing education requirements toward license renewal for California psychologists. Psychologists are responsible for reporting their own attendance to the California Board of Psychology. Psychologists from other states should check with their respective licensing boards.

Licensed Clinical Social Workers and Marriage & Family Therapists
University of California, San Francisco School of Medicine (UCSF) is approved by the California Association of Marriage and Family Therapists to sponsor continuing education for LCSWs, LMFTs, LPCCs, and/or LEPs. UCSF maintains responsibility for this program/course and its content.

Course meets the qualifications for 14.50 hours of continuing education credit for LMFTs, LCSWs, LPCCs, and/or LEPs as required by the California Board of Behavioral Sciences.

Provider Number: 64239

No instructor or facilitator is permitted to promote or advocate for a single modality of treatment that is discriminatory or likely to harm clients, based upon current accepted standards of practice. All CAMFT- certified education must provide training on how to treat all clients in an ethically and clinically sound manner.

Course Outline:

THURSDAY MARCH 5, 2020

7:15-7:50am Registration and Continental Breakfast

7:50-8:00 Welcome and Course Overview
Lucy S. Crain, MD, MPH, FAAP
Geraldine Collins-Bride, MS, ANP, FAAN

8:00-8:30 New DDS Programs for People with Developmental Disabilities
Tiffani Andrade, MA & Lauren Libero, PhD

8:30-9:15 The Role of Advocacy to Improve Systems of Care
Mark Del Monte, JD

9:15-9:30 Q & A

9:30-9:45 Break, Exhibits

9:45-10:30 Language Nutrition for Language Health: How to talk to children with autism and developmental disabilities
Heidi M. Feldman, MD, PhD

10:30-11:20 Who Defines My Quality of Life?
Melissa Crisp-Cooper and Katie Savin

11:20-12:05 Special Needs Trusts, Self Determination and Supported Decision-Making
Stephen Dale, JD

12:05-12:15 Q & A

12:15-1:15pm Lunch (On Your Own)

1:15-2:00 The Role of the California State Council On Developmental Disabilities: Advocacy & Systems Change
Aaron Carruthers

2:00-2:45 What's New with Augmentative Communication and Assistive Technologies
Kelly Rinehart, MA, CCC-SLP

2:45-3:00 Break, Exhibits

3:00-4:00 Reimagining the Possible for Non-Speaking, Autistic People
Clarissa Kripke, MD, Hari Srinivasan, David Teplitz, Tyler Fihe

4:00-4:10 Q & A

4:10-4:40 Maximizing Potential- Understanding the Dimension of Neurodiversity
Kristen Pedersen

4:40-4:45 Q & A

ANNUAL SHRIVER LECTURE & AWARD

4:45-5:15 Jobs for People with Developmental Disabilities: Making It Happen!
Catherine Nichols

5:15-6:15pm Networking Reception

FRIDAY MARCH 6, 2020

7:15-7:50am Registration and Continental Breakfast

7:50-8:00 Welcome and Daily Overview
Lucy S. Crain, MD, MPH, FAAP
Geraldine Collins-Bride, MS, ANP, FAAN

8:00-8:45 California Children’s Services: Nuts and Bolts
Ben Meisel, MD

8:45-9:15 Private Lives, Private Dollars: How Philanthropy Can Address and Enhance Healthcare for Adults with Developmental Disabilities
Ryan Easterly

9:15-9:30 Q & A

9:30-9:45 Break, Exhibits

9:45-10:30 Cerebral Palsy: Personal & Professionals Perspectives
Henry Chambers, MD

10:30-11:15 A Conversation on Cerebral Palsy from Consumers and Professionals
Elizabeth Grigsby, Henry Chambers, Ryan Easterly, Ben Meisel

11:15-11:30 Q & A

11:30-1:00pm Lunch (On Your Own)

1:00-1:30 Dangerous or Deadly “Cures” for Autism and Other DD
Neal Rojas, MD, MPH

1:30-2:00 Dental Care for Children & Adults with DD: Special Considerations
Allen Wong, DDS, EdD

2:00-2:45 Silence is Violence
Mark Starford and Kecia Weller

2:45-3:00 Q & A

3:00-3:15 Coffee Break

3:15-4:00 Mental Health Challenges/Psychopharmacology for Individuals with DD
Richard Goldwasser, MD and Susan Goldwasser, MD

4:00-4:15 Q & A

4:15pm Course Adjourns

Chairs:

Lucy S. Crain, MD, MPH, FAAP
Professor of Pediatrics (Emerita)
UCSF School of Medicine
Adjunct Professor of Pediatrics
Stanford University

Geraldine Collins Bride, MS, ANP, FAAN
Clinical Professor & Vice Chair for Faculty Practice
Department of Community Health Systems
School of Nursing
University of California, San Francisco

Faculty:

GUEST FACULTY

Tiffani Andrade, MA
Assistant Deputy Director
CA Department of Developmental Services, Sacramento, CA

Aaron Carruthers
Executive Director
State Council on Developmental Disabilities

Henry Chambers, MD
Pediatric Orthopedic Surgeon Professor of Clinical Orthopedic Surgery,
University of California, San Diego Program Director, Pediatric Orthopedic Education
Southern Family Chair of Cerebral Palsy Program
Medical Director, David Sutherland Motion Analysis Laboratory
Rady Children’s Hospital San Diego

Melissa Crisp-Cooper
Health Advocate
UCSF Office of Developmental Primary Care

Stephen W. Dale, Esq LLM
Attorney and Disability Rights Advocate; The Dale Law Firm, PC

Mark Del Monte, JD
CEO/Executive Vice President American Academy of Pediatrics (AAP)

Ryan Easterly
Executive Director, WITH Foundation

Heidi M. Feldman, MD, PhD
Ballinger-Swindells Professor of Developmental and
Behavioral Pediatrics Stanford University School of Medicine

Tyler Fihe
Autism Consultant, California

Richard Goldwasser, MD
Psychiatric Consultant to Redwood Coast Regional Center and North Bay Regional Center

Susan Goldwasser, MD
Psychiatric Consultant to Redwood Coast Regional Center and North Bay Regional Center

Elizabeth Grigsby
Consumer Rights Advocate Golden Gate Regional Center San Francisco, CA

Lauren Libero, PhD
Autism Program Specialist
CA Department of Developmental Services, Sacramento, CA

Ben Meisel, MD
Medical Director – California Children’s Services
San Francisco Department of Public Health

Catherine Nichols
Senior Director of Accessibility Programs
Salesforce

Kristen Pedersen
Senior Director, Business Development and Workforce Inclusion; The Arc-San Francisco

Kelly Rinehart, MA, CCC-SLP
AAC Specialist Speech/Language Pathologist Augmentative Communication & Technology Services

Katie Savin, MSW, ASW
PhD Student, School of Social Welfare; University of California, Berkeley

Hari Srinivasan
Undergraduate in Psychology University of California, Berkeley

Mark Starford
Director, Board Resource Center

David Teplitz
Undergraduate in Political Science University of California, Berkeley

Kecia Weller
Disability Rights Advocate and the Board Resource Center Abuse Prevention Advisory Team Lead

Allen Wong, DDS, EdD, DABSCD
Pacific Dugoni School of Dentistry Professor and Director AEGD Program; Director Hospital Dentistry Program; Global Clinical Advisor, Special Olympics Special Smiles Program

UCSF FACULTY

Clarissa C. Kripke, MD, FAAFP
Professor of Family and Community Medicine; Director, Office of Developmental Primary Care, Department of Family and Community Medicine

Neal Rojas, MD
Associate Clinical Professor of Pediatrics; Developmental Behavioral
Pediatrician, Division of Developmental Medicine

Travel & Lodging:

Holiday Inn Golden Gateway
1500 Van Ness Avenue
San Francisco CA 94109
Hotel Phone: 415-441-4000
Reservations: 866-272-7098

ONLINE Reservations

Rates: $249 per night
Cutoff Date: February 3, 2020 or once room block is sold out

By staying at the host hotel, you help UCSF meet its contractual obligations and keep registration fees reasonable.

Air Transportation and Rental Car

UNITED AIRLINES
UCSF has negotiated special fares with United Airlines for our course attendees.
Download Online Booking Instructions (.pdf)

HERTZ RENT A CAR
Hertz is pleased to offer discounts for our course attendees.
Website www.hertz.com CV Code: 03BW0139

You can also reserve by calling Hertz at 800-654-3131 and referencing CV Code: 03BW0139