UCSF CME 21st Annual Developmental Disabilities:
An Update for Health Professionals
* Live Stream *

Please create a new account to register if you haven't already done so. Please do not create multiple accounts. If you have forgotten your password, please choose "Login to Existing Account" then choose "Forgot Password."


Overview Objectives Accreditation Course Outline
Chairs Faculty Travel & Lodging Cancellation Policy

Department: Interdisciplinary
Course Number: MOC22001
Activity Start Date: March 24, 2022
Activity End Date: March 25, 2022
Location: Live interactive virtual conference

Physicians $450
Other Health Professionals $325
Residents/Fellows $325
Community Members (no CME) $100

Non-profit service organizations are welcome to exhibit at the course. 
Contact Gaelen for more information Gaelen.Lombard@ucsf.edu



This 21st annual interdisciplinary conference offers a unique update for primary care and subspecialty health care professionals and others who care for children, youth, and adults with developmental disabilities and complex health care needs. Our successful inaugural live stream conference in 2021 was well-received, reaching an audience of more than 300 registrants representing 16 states. Due to continuing concerns with the COVID 19 pandemic, we will continue the live stream format, employing a live stream webinar and user-friendly interactive virtual platforms. The live presentations will be recorded and made available for 30 days so you can review any content as needed. As in past pre-pandemic conferences, non-profit exhibitors will be available to provide resources to help you to deliver more informed care for patients and clients of all ages.

Our expert faculty will address topics of interest to pediatricians, family physicians, nurse clinicians, psychologists, internists and others who are involved in the health care of children and adults with developmental disabilities. This year’s conference features discussions on assisted living options, medical management of cerebral palsy in children and adults, health disparities, updates in genetics, autism, and self-advocacy as well as perspectives on envisioning the future for diagnosis, prevention, and treatment of epilepsy and other conditions commonly associated with developmental disabilities. While the conference is designed and accredited for health care professionals, we welcome families and individuals with developmental disabilities to also attend.

This activity is developed by a community planning and advisory committee made up of self-advocates and representatives from the following agencies: UCSF, Stanford University, The Arc San Francisco, Golden Gate Regional Center, East Bay Regional Center, State Council on Developmental Disabilities, Support for Families, WITH Foundation, the San Francisco Department of Public Health, and the California Department of Developmental Services.


This course will be offered as a live interactive virtual conference. Login instructions along with the digital syllabus will be shared with attendees a week before the meeting. Included in your registration fee is access to the course recordings on demand (available within a week after the conference) for any content you want to review, available for up to 30 days post-course. Attendees must tune in to the live conference in order to receive CE credit for attending.

Back To Top


An attendee completing this course will be able to:

1. Approach the care of patients with disabilities with an increased awareness of social and cultural differences and disparities, cognitive bias, and implications for quality access to healthcare;

2. Consult with patients and families on state and national policy issues relevant to home-based community services and access to supported living options together with important social and recreation activities for those with special needs;

3. Identify surgical and non-surgical interventions for children and adults with cerebral palsy and to know when and to whom to refer;

4. Recognize the emergence of self-advocacy and self-determination and respect their definitions and importance;

5. Describe consumer rights and inclusion considerations for people with disabilities;

6. Improve coordination with mental health services, dual diagnoses, and know when and to whom to refer for mental health concerns;

7. Apply clinical knowledge about speech and swallowing problems, indications for gastrostomy and/or feeding tubes and other practical information for patients with developmental disorders;

8. Identify and recognize genetic conditions and know when to refer patients with spina bifida and other less common disorders;

9. Describe what research holds for the future of epilepsy and other neurodevelopmental disorders;

10. Incorporate into practice elements of ACES, Trauma Informed Care, and PEARLS Screening as related to the healthcare needs of patients.

Back To Top


The University of California, San Francisco School of Medicine (UCSF) is accredited by the Accreditation Council for Continuing Medical Education to provide continuing medical education for physicians.

UCSF designates this live activity for a maximum of 14.25  AMA PRA Category 1 CreditsTM . Physicians should claim only the credit commensurate with the extent of their participation in the activity.

This CME activity meets the requirements under California Assembly Bill 1195, continuing education and cultural and linguistic competency.

Family Physicians
The AAFP has reviewed 21st Annual Developmental Disabilities: Update for Health Professionals and deemed it acceptable for up to 14.25 Live AAFP Prescribed credits. Term of Approval is from 03/24/2022 to 03/25/2022. Physicians should claim only the credit commensurate with the extent of their participation in the activity.

For the purpose of recertification, the American Nurses Credentialing Center accepts  AMA PRA Category 1 CreditsTM issued by organizations accredited by the ACCME.

Physician Assistants
AAPA accepts category 1 credit from AOACCME, Prescribed credit from AAFP, and  AMA PRA Category 1 CreditsTM from organizations accredited by the ACCME.

This educational activity is recognized by the California Board of Psychology as meeting the continuing education requirements toward license renewal for California psychologists. Psychologists are responsible for reporting their own attendance to the California Board of Psychology. Psychologists from other states should check with their respective licensing boards.

Licensed Clinical Social Workers and Marriage & Family Therapists
University of California, San Francisco School of Medicine (UCSF) is approved by the California Association of Marriage and Family Therapists to sponsor continuing education for LCSWs, LMFTs, LPCCs, and/or LEPs. UCSF maintains responsibility for this program/course and its content.

Course meets the qualifications for 14.25 hours of continuing education credit for LMFTs, LCSWs, LPCCs, and/or LEPs as required by the California Board of Behavioral Sciences.

Provider Number: 64239

No instructor or facilitator is permitted to promote or advocate for a single modality of treatment that is discriminatory or likely to harm clients, based upon current accepted standards of practice. All CAMFT certified education must provide training on how to treat all clients in an ethically and clinically sound manner.

Back To Top

Course Outline:


7:30-7:50am Morning Check-in

7:50-8:00 Welcome and Course Overview
Lucy S. Crain, MD, MPH, FAAP
Geraldine Collins-Bride, MS, ANP, FAAN

8:00-8:35 Keynote Lecture: Health Equity for People with Disabilities
Amy J. Houtrow, MD, PhD, MPH

8:35-8:40 Q & A

8:40-9:10 Update on the California Department of Developmental Services and Access to Care
Lauren Libero, PhD and Leinani Walter

9:10-9:40 Current Status and Progress with Federal Legislation and State Implementation of Home-based Community Services
Amanda Pyle and Mackenzie Baysinger

9:40-9:45 Q & A

9:45-10:05 Break, Exhibits

10:05-11:05 No Place Like Home – A Panel on Housing Solutions and Considerations
Moderator: Eric Zigman
Panelists: Fatimah Aure, Darin Lounds, Jan Stokley

11:05-11:15 Q & A

11:15-11:45 California’s Self-Determination Program: Overview & Update
Sheraden Nicholau

11:45-12:00pm Q & A

12:00-1:30pm Recess for Lunch

1:30-2:00 Crip Camp Panel: The Importance of Social Rec, Advocacy, and Community
Moderator: Pat Hornbecker
Panelists: Melissa Crisp Cooper, David Dubinsky, Heather Ostrau,Jane Diaz, RN

2:00-2:15 Q & A

2:15-2:45 Orthopaedic Management of Cerebral Palsy
Kristin Livingston, MD

2:45-3:15 Rehab Management of Cerebral Palsy
Taron Davis, MD

3:15-3:25 Q & A

3:25-3:45 Break, Exhibits

3:45-4:15 Neuro-recovery Updates: Maintaining and Improving Motor Function
Adelyn Tu-Chan, DO


4:15-4:25 Introduction

4:25-4:55 Advocacy, Inclusion and Consumer Rights
Elizabeth Grigsby

4:55-5:00 Q & A

5:00pm Course Adjourns



7:45-7:50am Morning Check-in

7:50-8:00 Welcome and Daily Overview
Lucy S. Crain, MD, MPH, FAAP
Geraldine Collins-Bride, MS, ANP, FAAN

8:00-8:35 The State of Mental Health Services for People with Developmental Disabilities
Melissa Stafford Jones

8:35-8:45 Q & A

8:45-9:15 Top Ten Lessons from ASAN
Julia Bascom

9:15-9:20 Q & A

9:20-9:50 Sexual Health
Sarah Nathan, MS, RN, FNP

9:50-10:00 Q & A

10:00-10:15 Break, Exhibits

10:15-10:45 Tubes, Trachs, and Technology
Glenn Rosenbluth, MD

10:45-10:55 Q & A

10:55-11:15 Trauma-informed Care: Use of PEARLS Screening
Karen Bohall-Ortega, MA, LMFT

11:15-11:35 TRIADS: Trauma and Resilience-informed Inquiry for Adversity, Distress, and Strengths
Anda Kuo, MD and Alicia F. Lieberman, PhD

11:35-11:45 Q & A

11:45-1:00pm Recess for Lunch


1:00-1:40 Genetics 101 and Developmental Disabilities
Bryce Mendelsohn, MD, PhD

1:40-2:20 Novel Therapies for Mitochondrial Disorders
Gregory M. Enns, MD

2:20-2:30 Q & A

2:30-3:10 Fetal Surgery for Spina Bifida: A MOMS Update
Amy J. Houtrow, MD, PhD, MPH

3:10-3:15 Q & A

3:15-3:30 Break, Exhibits

3:30-4:00 Rare or Rarely Diagnosed? Genetic Syndromes in Neurodevelopmental Disorder Patients
Joyce So, MD, PhD

4:00-4:05 Q & A

4:05-4:35 Keynote Lecture: The Dawn of Precision Medicine in Epilepsy
Daniel H. Lowenstein, MD

4:35-4:40 Q & A

4:40-4:45 Closing Remarks

4:45pm Course Adjourns

Back To Top


Lucy S. Crain, MD, MPH, FAAP
Professor of Pediatrics (Emerita), UCSF School of Medicine
Adjunct Professor of Pediatrics, Stanford University

Gerri Collins-Bride, RN, MS, ANP-BC, FAAN
Clinical Professor Emerita
Department of Community Health Systems
UCSF School of Nursing

Back To Top



Fatimah Aure
Director of Field and Capacity Building
The Kelsey

Julia Bascom
Executive Director
Autistic Self Advocacy Network

Mackenzie Baysinger
Supervisor of Community Engagement & Quality Assurance
Golden Gate Regional Center

Karen Bohall-Ortega, MA, LMFT
Director of Special Projects
Support for Families

Melissa Crisp Cooper
Health Advocate, UCSF Office of Developmental Primary Care

Jane Diaz, RN
Registered Nurse, Clinic by the Bay
Parent of a Person with Developmental Disabilities

David Dubinsky
Chief Executive Officer
Pomeroy Recreation & Rehabilitation Center

Gregory M. Enns, MD
Professor of Pediatrics
Director, Biochemical Genetics Program
Stanford University

Elizabeth Grigsby
Consumer Rights Advocate
Golden Gate Regional Center

Pat Hornbecker
President, Board of Directors
The Arc California

Amy J. Houtrow, MD, PhD, MPH
Professor and Vice-Chair,
Department of Physical Medicine and Rehabilitation, and of Pediatrics
Vice-Chair for Quality, Department of Physical Medicine and Rehabilitation
University of Pittsburgh
Division Chief, Pediatric Rehabilitation Medicine at
UPMC Children’s Hospital of Pittsburgh

Melissa Stafford Jones
Director, Children and Youth Behavioral Health Initiative
California Health and Human Services Agency

Lauren Libero, PhD
Autism Program Specialist
California Department of Developmental Services

Darin Lounds
Executive Director
Housing Consortium of the East Bay

Bryce Mendelsohn, MD, PhD
Medical Geneticist
Kaiser Permanente Oakland, CA

Sheraden Nicholau
Regional Manager, Bay Area
State Council on Developmental Disabilities

Heather Ostrau

Amanda Pyle
Director, Community Services
Golden Gate Regional Center

Jan Stokley
Executive Director
Housing Choices

Leinani Walter
Assistant Deputy Director for Service Access and Equity
California Department of Developmental Services

Eric Zigman
Executive Director
Golden Gate Regional Center


Taron Davis, MD
Assistant Professor of Orthopaedic Surgery, and of
Pediatric Rehabilitation Medicine

Anda Kuo, MD
Professor of Pediatrics
Co-Director, CA ACES Learning and Quality Improvement Collaborative (CALQIC)

Alicia F. Lieberman, PhD
Irving B. Harris Endowed Chair in Infant Mental Health
Vice Chair for Academic Affairs, UCSF Department of Psychiatry
Director, Child Trauma Research Program

Kristin Livingston, MD
Associate Professor of Orthopaedic Surgery
Director of Physician Experience, UCSF Department of Orthopaedic Surgery

Daniel H. Lowenstein, MD
Executive Vice Chancellor and Provost, UCSF
Robert B. and Ellinor Aird Professor and Vice Chairman, Department of Neurology
UCSF School of Medicine

Sarah Nathan, MS, RN, FNP
Assistant Clinical Professor
UCSF School of Nursing
Family Health Care Nursing Department

Glenn Rosenbluth, MD
Professor of Pediatrics
Director of Quality and Safety Programs,
UCSF Office of Graduate Medical Education

Joyce So, MD, PhD
Associate Professor of Pediatrics, and of Medicine
Medical Director of Adult Genetics
Divisions of Medical Genetics/General Internal Medicine
Departments of Pediatrics/Medicine

Adelyn Tu-Chan, DO
Assistant Professor of Neurology
UCSF Weill Institute for Neurosciences
Director of the Spasticity & Motor Recovery Program, UCSF

Back To Top

Travel & Lodging:


Back To Top

Cancellation Policy:

Cancellations received in writing before March 22, 2022 will be refunded, less a $75 administrative fee. No refunds will be made on cancellations received after that date.

Please email your requests to RegEmail@ucsf.edu

Back To Top